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Round II - This time I will KILL IT!

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  • I know that those "hippie" stores seem really expensive, but running a store requires high margins to cover all the costs (including a salary for you above the poverty line). You'd be surprised by how much it costs for rent, complying with government regulations, and inventory loss (stuff going stale/bad and petty theft).
    “It is no use trying to 'see through' first principles. If you see through everything, then everything is transparent. But a wholly transparent world is an invisible world. To 'see through' all things is the same as not to see.”

    ― C.S. Lewis, The Abolition of Man

    Comment


    • Pekka (and everyone else for help),
      there is a news article about swedes discovering a new way to "bombard" cancerous cells.

      Νέο μηχανισμό καταπολέμησης του καρκίνου, που ανατινάζει στην κυριολεξία τα καρκινικά κύτταρα, ανακάλυψαν Σουηδοί επιστήμονες, σύμφωνα με δηλώσεις τους. Οι ερευνητές του ιατρικού πανεπιστημιακού ...

      This is the news item but it's in greek.
      Key words to search for it would be
      1. "Institute of Karolinska (sp?)
      2. University of Upsala,
      3. Vacquinol-1
      4. Patrick Enfords (sp?) is the lead proffesor of research there.

      They say it's a brand new therapy mechanism for gloiovlastoma (sp?) which I think is what you have

      The first clinical trial on humans is being prepared right this time.
      The method works by making the cancerous cells "feed" too much so as they explode and their membranes collapse. Something like that.
      They specifically say that it's for brain tumors.
      Last edited by Bereta_Eder; March 24, 2014, 07:17.

      Comment


      • Originally posted by Pekka View Post
        molly bloom, hmm that's interesting... I've had stereotactic therapy, which is fairly high tech and focuses on very small areas of interest as to deliver maximum dosage and avoid healthy areas. But needless to say there's still side effects... but currently it's supposed to be one of the better options to undergo. I'm not disappointed about that.

        My days vary a lot. Right now I'm having an excellent day, but it might change in an hour or two. Most ridiculous small things can trigger anger and anxiety and it takes a long time (or a beer) to get rid off. Morning times are difficult, I feel really depressed and paranoid about having multiple tumors even though there is no evidence of that.

        Came back to see mushroom links, as I decided to grow my own maitake/shiitake etc. mushrooms. I've come across about PSK extract so many times it's time to act. I'm not supposed to take any extracts or naturopathic things during chemo and I'm afraid to go against the "advice" as they say it might affect chemo efficiency negatively, but taking those things in their original format (as in fish, not fish oil capsules) is totally OK and preferrable. So I'm not buying PSK extract, instread I need the mushrooms themselves. It will be interesting project, to grow something and see living things. Put some of that love into it

        Originally posted by Pekka View Post
        And now I can't find them mushroom links.. must be my chemo brain or something.

        I hope it's side effect but my hands have little shaking, just a bit... and i have general joint and muscle weakness to the point where it is uncomfortable. The latter is definitely radiation but I hope the former is as well. Or a result of the latter one. I can hold my hands steady but when they're realyl tired they shake just a bit. I'm keeping my eyes on it and paranoid

        Oh, I also got the job I was looking for, had to turn it down. Pity. I was selected out of 80, to be a sort of cyber defense co-ordinator/arcitecht for a big ISP. Needless to say it would have been a big bump upwards in terms of pay, benefits and career (and interesting job!).

        I can't be bothered right now though. I have to have satisfaction that when I get back, all that stuff is still waiting for me, i just need to forget all work stuff now and focus on relaxing and fighting and not stressing. I'm already very much low stress since I haven't been @ work and have given up lots of duties with my own business. I think I have been lying to myself saying that I enjoy my work. In a way I do, but clearly not as much as I thought. I love reading books, doing yoga much more. And spending time with my kids - they're full time work!! Of course I'll be going back once I'm cleared and the tumor is in remission. I might change career path altogether. No more computers for me. Thinkign about setting up some sort of cancer help store, which offers affordable prices (unlike these hippie stores, prices are UP UP and UP!) for everyone, like food products, books, help, information, support, a holistic approach, one stop shop for anyone in need - and NOT ripping them off! That would be cool. I think that is my duty and mission in life - to help others after I'm well enough to be of help. This I have already decided. Just forgetting about money and bills, focus on helping others, this will help me as well.
        You rock, Pekka!
        (\__/)
        (='.'=)
        (")_(") This is Bunny. Copy and paste bunny into your signature to help him gain world domination.

        Comment


        • Originally posted by Bereta_Eder View Post
          Pekka (and everyone else for help),
          there is a news article about swedes discovering a new way to "bombard" cancerous cells.

          Νέο μηχανισμό καταπολέμησης του καρκίνου, που ανατινάζει στην κυριολεξία τα καρκινικά κύτταρα, ανακάλυψαν Σουηδοί επιστήμονες, σύμφωνα με δηλώσεις τους. Οι ερευνητές του ιατρικού πανεπιστημιακού ...

          This is the news item but it's in greek.
          Key words to search for it would be
          1. "Institute of Karolinska (sp?)
          2. University of Upsala,
          3. Vacquinol-1
          4. Patrick Enfords (sp?) is the lead proffesor of research there.

          They say it's a brand new therapy mechanism for gloiovlastoma (sp?) which I think is what you have

          The first clinical trial on humans is being prepared right this time.
          The method works by making the cancerous cells "feed" too much so as they explode and their membranes collapse. Something like that.
          They specifically say that it's for brain tumors.
          This was published in the journal Cell. Very promising, but early. They are not ready for a phase 1 trial yet. Get on the others to buy you enough time for this approach too. Let me know how that process goes. I am local to UCSF and may be able to help with communications if you need.
          “It is no use trying to 'see through' first principles. If you see through everything, then everything is transparent. But a wholly transparent world is an invisible world. To 'see through' all things is the same as not to see.”

          ― C.S. Lewis, The Abolition of Man

          Comment


          • Originally posted by pchang View Post
            This was published in the journal Cell. Very promising, but early. They are not ready for a phase 1 trial yet. Get on the others to buy you enough time for this approach too. Let me know how that process goes. I am local to UCSF and may be able to help with communications if you need.
            This is indeed promising, I already eamiled them and asked how I could possibly participate, no reply yet.

            I'm kidn of freaking out now, one of my fingers is twitching a bit and I cannot help it, I hope it goes away soon... one side of my face feels weird and my head is swollen (including brain) and it hurts. I called to the hospital but they wouldn't even give me pain medication for any of it, just more cortisone. Might be nothing but I don't know for sure. I hope I'll be able to these Swedes soon and get to the program, it is very promising indeed!

            edit: Basically, my doctors are waiting for me to die and have given up on me. My next appointment is in 3 weeks for Pete's sake!
            In da butt.
            "Do not worry if others do not understand you. Instead worry if you do not understand others." - Confucius
            THE UNDEFEATED SUPERCITIZEN w:4 t:2 l:1 (DON'T ASK!)
            "God is dead" - Nietzsche. "Nietzsche is dead" - God.

            Comment


            • It will pass Pekka, it just hasn't realized yet it is dealing with the Supercitizen!
              If it would make you feel better you could go to the hospital anyway. Whatever you think.

              Comment


              • Well, it passed... I think I panicked because I slept, and the weird feelign was probably just because of the hard pillow and maybe I slept on my hand and that's why my finger twitched afterwards for quite a while (few hours), and swelling is normal in this, radiation+chemo does that to the brain, both inside and head outside. Of course these are also signs of tumor growth but I choose it's not. This time it was sleeping in bad position and over analysis on that.
                In da butt.
                "Do not worry if others do not understand you. Instead worry if you do not understand others." - Confucius
                THE UNDEFEATED SUPERCITIZEN w:4 t:2 l:1 (DON'T ASK!)
                "God is dead" - Nietzsche. "Nietzsche is dead" - God.

                Comment


                • Originally posted by Pekka View Post
                  Well, it passed... I think I panicked because I slept, and the weird feelign was probably just because of the hard pillow and maybe I slept on my hand and that's why my finger twitched afterwards for quite a while (few hours), and swelling is normal in this, radiation+chemo does that to the brain, both inside and head outside. Of course these are also signs of tumor growth but I choose it's not. This time it was sleeping in bad position and over analysis on that.
                  Pekka- some meditation is called for, I think. Maybe some Guinness too ?




                  Enjoy :

                  Vive la liberte. Noor Inayat Khan, Dachau.

                  ...patriotism is not enough. I must have no hatred or bitterness towards anyone. Edith Cavell, 1915

                  Comment


                  • molly bloom, yes, meditation helps... and Guinness helps too!

                    I've had a decent weekend, no arguing with the wife, about to book a short trip, going to Sweden... that'll be nice for us, just the two of us.

                    Also, some of the skin changes in my head has now come off, my head was all red and brown, as if I've been hit with a shovel, and that's what it felt like... now it's only reddish... and a bit brownish regionally. So my skin is bouncing back. Now I hope swelling goes away as well... because that is the cause of pain.

                    It seems to me that being alone is the worst thing for me, so I'll change that next week, I have plenty of things to do. I need to be planning things to do in the future, be future-oriented! Not past oriented, that just makes me weep and be miserable. I need to be fighting as if I'm winning this battle and not as if I'm being overrun. Physically? I'm still fairly intact. Considering the massive damage, I'm sort of walking miracle in itself I figure. Some cancer can be reversible as well, why not me? It's not death sentence, except on paper. But I don't like paper, that's why I use the computer!
                    In da butt.
                    "Do not worry if others do not understand you. Instead worry if you do not understand others." - Confucius
                    THE UNDEFEATED SUPERCITIZEN w:4 t:2 l:1 (DON'T ASK!)
                    "God is dead" - Nietzsche. "Nietzsche is dead" - God.

                    Comment


                    • Pekka, you're allright man !
                      "Ceterum censeo Ben esse expellendum."

                      Comment


                      • Originally posted by Pekka View Post
                        molly bloom, yes, meditation helps... and Guinness helps too!

                        I've had a decent weekend, no arguing with the wife, about to book a short trip, going to Sweden... that'll be nice for us, just the two of us.

                        Also, some of the skin changes in my head has now come off, my head was all red and brown, as if I've been hit with a shovel, and that's what it felt like... now it's only reddish... and a bit brownish regionally. So my skin is bouncing back. Now I hope swelling goes away as well... because that is the cause of pain.
                        Pekka, are you putting anything on your skin ? Believe it or not, raw honey does help (obviously you need to put a dressing over it, or bedtime becomes a sticky mess... ) as do the aforementioned applications of Vitamin D and E oil.

                        Enjoy Sweden- I was thinking of you a few weeks ago when I was watching a couple of the Swedish dvds of 'Wallander'.
                        Vive la liberte. Noor Inayat Khan, Dachau.

                        ...patriotism is not enough. I must have no hatred or bitterness towards anyone. Edith Cavell, 1915

                        Comment


                        • Well... bad news, I got reply from the professor in charge of the study and he said it will take at least 2 years until they get all the paper work etc. done for Phase I trials. SO I figure I have to live at least 2 years, that's out of the scope of my prognosis for sure but prognosis' are for sissies anyway, I'l just make it... and keep on searching for other trials.
                          In da butt.
                          "Do not worry if others do not understand you. Instead worry if you do not understand others." - Confucius
                          THE UNDEFEATED SUPERCITIZEN w:4 t:2 l:1 (DON'T ASK!)
                          "God is dead" - Nietzsche. "Nietzsche is dead" - God.

                          Comment


                          • Originally posted by Pekka View Post
                            that's out of the scope of my prognosis for sure but prognosis' are for sissies anyway, I'l just make it...
                            The Finnish* warrior takes aim at a glioblastoma (*okay, Sami, but it's one of my favourite films...)

                            Click image for larger version

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                            'Pathfinder' :

                            Vive la liberte. Noor Inayat Khan, Dachau.

                            ...patriotism is not enough. I must have no hatred or bitterness towards anyone. Edith Cavell, 1915

                            Comment


                            • Originally posted by Pekka View Post
                              molly bloom, yes, meditation helps... and Guinness helps too!

                              I've had a decent weekend, no arguing with the wife, about to book a short trip, going to Sweden... that'll be nice for us, just the two of us.

                              Also, some of the skin changes in my head has now come off, my head was all red and brown, as if I've been hit with a shovel, and that's what it felt like... now it's only reddish... and a bit brownish regionally. So my skin is bouncing back. Now I hope swelling goes away as well... because that is the cause of pain.

                              It seems to me that being alone is the worst thing for me, so I'll change that next week, I have plenty of things to do. I need to be planning things to do in the future, be future-oriented! Not past oriented, that just makes me weep and be miserable. I need to be fighting as if I'm winning this battle and not as if I'm being overrun. Physically? I'm still fairly intact. Considering the massive damage, I'm sort of walking miracle in itself I figure. Some cancer can be reversible as well, why not me? It's not death sentence, except on paper. But I don't like paper, that's why I use the computer!

                              Keep truckin', Pekka.
                              (\__/)
                              (='.'=)
                              (")_(") This is Bunny. Copy and paste bunny into your signature to help him gain world domination.

                              Comment


                              • Swelling comes and goes, I figure it's OK. I'm not in pain. I'm pissed off at my medical team. I try not to stress about it, it's not their fault I am ill, they are doign their best but sometimes you jsut have to take control and not be the passenger. The time is NOW. I'll let them know what we will do next (more therapies added to the strategy, clinical trials, aggressive nutrition etc.) and they will have to comply or excuse themselves. I hope they're with the winning team though. If they're not fighting with me, I do not need them, they have been successful at depressing me too many times. I don't need depressors. We need to be a team, I'm not their patient, I'm a person who will do what is necessary.

                                Today was good, I spent 3 hours building our terrace, it will be awesome by the summer. We jsut agreed on US trip, Summer 2015 here we come!! We'll be at NW for a month, maybe make few excursions down to SoCal. Hopefully see some of you guys! Grab something to eat, beer, take few photos and post them here Kids are asleep, I'm enjoying my Guinness (Sorry I forgot who tipped me off, thank you!).

                                I'm starting to lose my fear of dying. In a sense I'm very free. I'm fighting like hell and not about to lose for sure but I am not afraid to die. I don't want to miss out on great years with my family, but that is it. Of course the latter is lots, enough to keep me fighting for a long time but the point is, death itself is not a scary thing for me. I've been scared for years, it's about time to not be scared. I mean, what's the worst that can happen? (No Louis CK jokes here about what Hell can be like )
                                In da butt.
                                "Do not worry if others do not understand you. Instead worry if you do not understand others." - Confucius
                                THE UNDEFEATED SUPERCITIZEN w:4 t:2 l:1 (DON'T ASK!)
                                "God is dead" - Nietzsche. "Nietzsche is dead" - God.

                                Comment

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